COVID-19 information

Welcome to our COVID-19 information hub. Here you will find all the latest information, patient experiences and tips and advice from our team.

News and important information

New government guidance for the clinically extremely vulnerable – FAQs

COVID vaccine FAQs

Should I get a COVID-19 antibody test?

How to stay safe as restrictions ease

VIDEO RECORDED LIVE on 12/07/2021. INFORMATION IS CORRECT AS OF THIS DATE.

In this webinar, we discussed how to manage your activity and integration with the wider community and society as lockdown ends. How do leukaemia patients measure what they are comfortable with and be able to safely navigate in this new landscape?

The expert panel explored what we know about COVID-19 today and available data regarding vaccination in leukaemia patients. What strategies and messages are important.

Patient stories

Patient Perspective – An update from lockdown

BLOG 1: Chronic Myeloid Leukaemia (CML) patient Vickie is back with her latest blog, where she discusses having to, unfortunately, go back on her medication, and how she’s coping during these unprecedented times. Read her blog here. 

BLOG 2: In this blog, our resident patient blogger Vickie talks about how she’s coping during this continued lockdown. You can read her blog here.

BLOG 3: Vickie is our resident patient blogger. Here, she chats about the current lockdown in England, and how she’s getting ready for the festive season. You can read her blog here.

BLOG 4: In her latest blog, our resident patient blogger Vickie talks about how she’s getting on in lockdown, and her experience of having her first COVID-19 vaccination. You can catch up on her blog here.

Shielding: a patient’s experience

Nick York is our Patient Advocacy Healthcare Liaison Officer and a chronic lymphocytic leukaemia (CLL) patient. Here, he talks about his experience of shielding himself from coronavirus so far. You can read his blog here.

COVID-19 vaccine: a patient’s experience

Hannah Mahoney is in remission from acute promyelocytic leukaemia. Here, she talks about her experience of receiving the COVID-19 vaccine. Read her experience here.

Lockdown and leukaemia: stories and poems from patients

In this blog, we’re featuring creative work from patients on their leukaemia diagnoses, as well as their experiences of shielding this year. You can read their poems here. 

 

Tips and advice

Staying connected online

How to stay connected online: Here, we’ve produced a guide for those who are new to video calling and forums on the different applications and websites you can use to chat with your loved ones and those in a similar situation to you. You can find out more here.

Tips for telephone consultations

With many hospital and GP appointments now via phone or video, we’re sharing our tips, along with tips from blood cancer patients, on how to get the best out of a telephone consultation. Read our blog here.

How to combat loneliness

If you’re feeling isolated, or lonely despite not even living alone, you’re not on your own. Here, we look at ways to combat loneliness both online and offline. You can find out more here. 

Post-lockdown anxiety

Feeling anxious about the easing of lockdown? In this article, Hospital Support Worker Kate Firkins talks us through how to manage anxiety. Read our article on post-lockdown anxiety here. 

Other COVID-19 information

COVID-19 vaccine and CLL patients: An analysis of the first published results

The first results of a key study on vaccine responses in leukaemia patients has been published. I this blog, our Patient Advocacy Manager, Charlotte, outlines the first reaction to the news and what the takeaway messages are for patients and their loved ones. Read the article here.

COVID-19 and MPN patients (including CML): results of a study from Oxford

A study from Oxford University Hospital looking at the response to COVID-19 vaccines of patients with chronic myeloid neoplasms was published on 16th June 2021. The study was published as a letter in the British Journal of Haematology. In this blog, our Patient Advocacy Manager outlines the first reaction to the news and what the takeaway messages are for patients and their loved ones. Read the article here. 

If you have any additional questions about the COVID-19 vaccine, please email support@leukaemiacare.org.uk.

You can also call our helpline: 08088 010 444, or use our WhatsApp service: 07500068065