COVID-19 information hub

Find all the latest COVID-19 information from FAQs to patient experiences as well as advice from our team.

Welcome to our COVID-19 hub where you can find all the latest information from our team.

We understand that this is a very challenging time for leukaemia patients and want to share what we know so far in relation to COVID-19, ranging from recent vaccine studies to patient stories as well as advice on how to combat emotions of loneliness.

Information from recent studies on vaccine responses

You can view the results from two recent studies that took place which examined vaccine responses in leukaemia patients.

COVID-19 vaccine and CLL patients: An analysis of the first published results

COVID-19 and MPN patients (including CML): results of a study from Oxford

Watch our latest COVID-19 webinar

INFORMATION CORRECT AS OF 28/09/2021.

This webinar explored the latest guidance and recommendations for leukaemia patients, including those who are immunocompromised and the clinically extremely vulnerable. Are there different recommendations for different groups of patients? The webinar provided updates on the latest COVID-19 data across the leukaemia types: vaccinations, responses, and looked at what this means in relation to protection. Information about COVID-19 boosters and progress with anti-COVID-19 monoclonal antibody research trials for the immune compromised were also discussed. We were joined by: Dr Helen Parry, National Institute for Health Research (NIHR), Birmingham University and Queen Elizabeth Hospital Birmingham. Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with leukaemia.

If you have any questions or would like further information, you can email support@leukaemiacare.org.uk or call 08088 010 444.

Patient stories

Patient Perspective – An update from lockdown

BLOG 1: Chronic Myeloid Leukaemia (CML) patient Vickie is back with her latest blog, where she discusses having to, unfortunately, go back on her medication, and how she’s coping during these unprecedented times. Read her blog here. 

BLOG 2: In this blog, our resident patient blogger Vickie talks about how she’s coping during this continued lockdown. You can read her blog here.

BLOG 3: Vickie is our resident patient blogger. Here, she chats about the current lockdown in England, and how she’s getting ready for the festive season. You can read her blog here.

BLOG 4: In her latest blog, our resident patient blogger Vickie talks about how she’s getting on in lockdown, and her experience of having her first COVID-19 vaccination. You can catch up on her blog here.

Shielding: a patient’s experience

Nick York is our Patient Advocacy Healthcare Liaison Officer and a chronic lymphocytic leukaemia (CLL) patient. Here, he talks about his experience of shielding himself from coronavirus so far. You can read his blog here.

COVID-19 vaccine: a patient’s experience

Hannah Mahoney is in remission from acute promyelocytic leukaemia. Here, she talks about her experience of receiving the COVID-19 vaccine. Read her experience here.

Lockdown and leukaemia: stories and poems from patients

In this blog, we’re featuring creative work from patients on their leukaemia diagnoses, as well as their experiences of shielding this year. You can read their poems here. 

 

Tips and advice

Staying connected online

How to stay connected online: Here, we’ve produced a guide for those who are new to video calling and forums on the different applications and websites you can use to chat with your loved ones and those in a similar situation to you. You can find out more here.

Tips for telephone consultations

With many hospital and GP appointments now via phone or video, we’re sharing our tips, along with tips from blood cancer patients, on how to get the best out of a telephone consultation. Read our blog here.

How to combat loneliness

If you’re feeling isolated, or lonely despite not even living alone, you’re not on your own. Here, we look at ways to combat loneliness both online and offline. You can find out more here. 

Post-lockdown anxiety

Feeling anxious about the easing of lockdown? In this article, Hospital Support Worker Kate Firkins talks us through how to manage anxiety. Read our article on post-lockdown anxiety here. 

If you have any additional questions about the COVID-19 vaccine, please email support@leukaemiacare.org.uk.

You can also call our helpline: 08088 010 444, or use our WhatsApp service: 07500068065