COVID-19 information hub

INFORMATION CORRECT AS OF 19/05/2022.

Managing and navigating activities with COVID-19 circulating in society since restrictions have lifted can be a challenge for immune compromised blood cancer patients and their families. This webinar explores the current guidance regarding vaccination, treatment strategies and processes that are in place to support the immune compromised.

We were joined by:

• Professor Alex Richter, Institute of Immunology and Immunotherapy. Professor and Honorary Consultant in Clinical Immunology, University of Birmingham.
• Dr Helen Parry, Institute of Immunology and Immunotherapy, Associate Professor and Consultant Haematologist, University of Birmingham
• Ella Guthrie, Policy and Public Affairs Officer at Leukaemia Care

If you have any questions or would like further information, you can email support@leukaemiacare.org.uk or call 08088 010 444.

Patient Perspective – An update from lockdown

BLOG 1: Chronic Myeloid Leukaemia (CML) patient Vickie is back with her latest blog, where she discusses having to, unfortunately, go back on her medication, and how she’s coping during these unprecedented times. Read her blog here. 

BLOG 2: In this blog, our resident patient blogger Vickie talks about how she’s coping during this continued lockdown. You can read her blog here.

BLOG 3: Vickie is our resident patient blogger. Here, she chats about the current lockdown in England, and how she’s getting ready for the festive season. You can read her blog here.

BLOG 4: In her latest blog, our resident patient blogger Vickie talks about how she’s getting on in lockdown, and her experience of having her first COVID-19 vaccination. You can catch up on her blog here.

Shielding: a patient’s experience

Nick York is our Patient Advocacy Healthcare Liaison Officer and a chronic lymphocytic leukaemia (CLL) patient. Here, he talks about his experience of shielding himself from coronavirus so far. You can read his blog here.

COVID-19 vaccine: a patient’s experience

Hannah Mahoney is in remission from acute promyelocytic leukaemia. Here, she talks about her experience of receiving the COVID-19 vaccine. Read her experience here.

Lockdown and leukaemia: stories and poems from patients

In this blog, we’re featuring creative work from patients on their leukaemia diagnoses, as well as their experiences of shielding this year. You can read their poems here. 

Staying connected online

How to stay connected online: Here, we’ve produced a guide for those who are new to video calling and forums on the different applications and websites you can use to chat with your loved ones and those in a similar situation to you. You can find out more here.

Tips for telephone consultations

With many hospital and GP appointments now via phone or video, we’re sharing our tips, along with tips from blood cancer patients, on how to get the best out of a telephone consultation. Read our blog here.

How to combat loneliness

If you’re feeling isolated, or lonely despite not even living alone, you’re not on your own. Here, we look at ways to combat loneliness both online and offline. You can find out more here. 

Post-lockdown anxiety

Feeling anxious about the easing of lockdown? In this article, Hospital Support Worker Kate Firkins talks us through how to manage anxiety. Read our article on post-lockdown anxiety here.