News and important information
Patient Perspective – An update from lockdown
BLOG 1: Chronic Myeloid Leukaemia (CML) patient Vickie is back with her latest blog, where she discusses having to, unfortunately, go back on her medication, and how she’s coping during these unprecedented times. Read her blog here.
BLOG 2: In this blog, our resident patient blogger Vickie talks about how she’s coping during this continued lockdown. You can read her blog here.
BLOG 3: Vickie is our resident patient blogger. Here, she chats about the current lockdown in England, and how she’s getting ready for the festive season. You can read her blog here.
BLOG 4: In her latest blog, our resident patient blogger Vickie talks about how she’s getting on in lockdown, and her experience of having her first COVID-19 vaccination. You can catch up on her blog here.
Shielding: a patient’s experience
Nick York is our Patient Advocacy Healthcare Liaison Officer and a chronic lymphocytic leukaemia (CLL) patient. Here, he talks about his experience of shielding himself from coronavirus so far. You can read his blog here.
COVID-19 vaccine: a patient’s experience
Hannah Mahoney is in remission from acute promyelocytic leukaemia. Here, she talks about her experience of receiving the COVID-19 vaccine. Read her experience here.
Lockdown and leukaemia: stories and poems from patients
In this blog, we’re featuring creative work from patients on their leukaemia diagnoses, as well as their experiences of shielding this year. You can read their poems here.
Tips and advice
Staying connected online
How to stay connected online: Here, we’ve produced a guide for those who are new to video calling and forums on the different applications and websites you can use to chat with your loved ones and those in a similar situation to you. You can find out more here.
Tips for telephone consultations
With many hospital and GP appointments now via phone or video, we’re sharing our tips, along with tips from blood cancer patients, on how to get the best out of a telephone consultation. Read our blog here.
How to combat loneliness
If you’re feeling isolated, or lonely despite not even living alone, you’re not on your own. Here, we look at ways to combat loneliness both online and offline. You can find out more here.
Feeling anxious about the easing of lockdown? In this article, Hospital Support Worker Kate Firkins talks us through how to manage anxiety. Read our article on post-lockdown anxiety here.
Other COVID-19 information
COVID-19 vaccine and CLL patients: An analysis of the first published results
The first results of a key study on vaccine responses in leukaemia patients has been published. I this blog, our Patient Advocacy Manager, Charlotte, outlines the first reaction to the news and what the takeaway messages are for patients and their loved ones. Read the article here.
COVID-19 and MPN patients (including CML): results of a study from Oxford
A study from Oxford University Hospital looking at the response to COVID-19 vaccines of patients with chronic myeloid neoplasms was published on 16th June 2021. The study was published as a letter in the British Journal of Haematology. In this blog, our Patient Advocacy Manager outlines the first reaction to the news and what the takeaway messages are for patients and their loved ones. Read the article here.