Left to #WatchWaitWorry – Patient stories

Meet the people whose lives are affected by Watch and Wait.

Meet David.

When David was told he would not be treated immediately and would instead be on Watch and Wait, he felt frustrated and confused. He tells more about his journey navigating through this tricky period, and what helped him understand his diagnosis better.

Meet Dany.

Dany, now 59, was just 55 when she was experiencing extreme fatigue and night sweats. Dany put it down to long working hours but eventually went to see her GP where she was diagnosed with chronic lymphocytic leukaemia (CLL) and was put onto Watch and Wait. Here, Dany shares her experience of life since.

Meet Margaret.

Margaret Miller was 62 years old when she was diagnosed with chronic lymphocytic leukaemia (CLL). Now 70, she reveals the stress of being recognised as a clinically extremely vulnerable (CEV) leukaemia patient during the pandemic, and how CLL patients are often the ‘forgotten cohort.’

Meet Martin.

Martin Vessey was 61 when he was diagnosed with chronic lymphocytic leukaemia (CLL). Now 65, Martin is sharing his experience of Watch and Wait and what he would improve about the sometimes anxiety-inducing period.

Meet Eileen.

Eileen, now 73 years old, was diagnosed with chronic lymphocytic leukaemia (CLL) at 67 years old after a routine blood test. Watch and Wait is not a name Eileen chooses to call active monitoring, but rather refer to it as ‘Watch and Live.’ Read more about Eileen’s story, just click on her name.

Meet Anton.

Anton Brcar was 47 when he was diagnosed with chronic lymphocytic leukaemia (CLL). Now 53, Anton tells us about his experience of the Watch and Wait period and what he would change to improve it, as well as the challenges he faced during the COVID-19 pandemic.