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Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Employment rights for parents of a child with leukaemia

There are over 1,600 children diagnosed with cancer in the UK each year – approximately a third are diagnosed with leukaemia. A leukaemia diagnosis has a huge impact on you, your child and the rest of your family - what follows is usually a very emotional and distressing time and lives are often turned upside down.

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Take a Moment to Catch Up

View our latest news and blog articles

October 8th

Spooktacular fundraising ideas for Halloween

Get your fangs stuck into these horrifying Halloween ideas!...

September 10th

SMC approves Kymriah CAR-T therapy for use on the NHS in Scotland for DLBCL patients

Yesterday, the Scottish Medicines Consortium approved the use of tisagenlecleucel-T (brand name Kymriah), on the NHS in Scotland, for patients with diffuse large-B cell lymphoma (DLBCL). Kymriah is a brand of CAR-T cell therapy....

August 14th

Nausea or vomiting as a symptom of leukaemia

Nausea and vomiting are normal things to experience when ill. However, in combination with other symptoms, they could also indicate a leukaemia ...