Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

#myCNSmatters

We're saying thank you for the invaluable role that Clinical Nurse Specialists (CNS) have in a leukaemia patient's journey. We want CNSs to know that they matter to patients, to charities and to other healthcare professionals.

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Take a Moment to Catch Up

View our latest news and blog articles

July 23rd

EHA update blog

Every year, the European Haematology Association (EHA) holds a scientific conference, bringing together everyone working in haematology to discuss the latest information. In this article, our Advocacy team give you a flavour of what was discussed and why these sessions are important to leukaemia patients....

July 22nd

Leukaemia Care’s Welfare Officer answers your FAQs

Did you know we can support you with queries relating to finances, housing and much more? Our Welfare Officer, Lisa, supports patients to apply for benefits, navigate a return to work, and much more. Here, she’s answered some of your most frequent questions....

July 14th

Many leukaemia patients face a devastating choice as ‘Freedom Day’ looms: their life or their livelihood?

“Many people living with leukaemia feel they have been forgotten about in the rush to ease COVID-19 restrictions." Here, you can find out what we are doing to help support clinically extremely vulnerable (CEV) leukaemia patients, ensuring they have a voice....