Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Money and benefits

A cancer diagnosis can affect many aspects of your life including your finances, working arrangements and travel. This section will help provide information and advice on the practical issues you may need to consider after diagnosis and during treatment.

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Take a Moment to Catch Up

View our latest news and blog articles

May 10th

Survivor’s Guilt

Jamie Woods is in remission from acute promyelocytic leukaemia (APL). Here, he discusses the guilt some patients feel for reaching remission when others don’t. ...

May 7th

Should I get a COVID-19 antibody test?

We have received a lot of questions about COVID-19 antibody tests and whether you should use these to see if you have responded to the COVID-19 vaccine. In this article, our Patient Advocacy Manager, Charlotte, explains what a COVID-19 antibody test does and why you should be cautious in how you interpret any results....

April 30th

What to expect: bone marrow biopsy

This is a procedure that you may need before a diagnosis or as an ongoing part of your treatment...