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Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Useful links on exercise

Returning to a “normal” life can see you reintroducing exercise into your daily routine. The following links contain excellent resources about exercise during and post treatment for a blood cancer.

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Take a Moment to Catch Up

View our latest news and blog articles

April 18th

The emotional impact of leukaemia – who is most at risk?

The emotional impact of a diagnosis can be just as distressing, if not sometimes more so, than the physical effects of blood cancer. This is especially true for patients who may be in remission and fear relapse, or patients on 'watch and wait'. In this blog, we look more at these emotionally 'at-risk' groups, and discuss what emotional support is available....

April 18th

Pain: part 3 – Abdominal discomfort

For many people, abdominal discomfort is perhaps an inevitable consequence of the excessive amounts of chocolate consumed on Easter Sunday. However, on a serious note, continued abdominal distress presenting as either a sharp pain or a constant sense of “fullness” in the belly, can sometimes be a sign of leukaemia. In fact, 11% of patients are thought to experience abdominal discomfort or a “swollen stomach” as a symptom prior to their diagnosis. Find out more about this symptom and how to spot it on our blog....

April 12th

Pain part two: Headaches

Throughout April, our Symptom Sunday is focussing on the leukaemia symptom of pain. Last week, we looked at bone pain, and in today's feature, we're taking a look at headaches and how a severe or sudden onset headache could be a sign of leukaemia....