Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Request a Resource

To order printed information, please select the number of each resource you require, and fill in your contact details. Unfortunately, we are unable to send printed information overseas.

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Take a Moment to Catch Up

View our latest news and blog articles

September 18th

CVs – a how-to guide

In our second blog on getting back to work, we look at CVs, their uses, and how to write one....

September 16th

Blood Cancer Awareness Month so far

We’re halfway through Blood Cancer Awareness Month and our Spot Leukaemia campaign. Here, we round up the campaign so far....

September 7th

The Scottish Medicine Consortium (SMC) approves gilteritinib for relapsed/refractory AML patients in Scotland

The Scottish Medicine Consortium (SMC) has recommended the use of gilteritinib for patients who have relapsed or refractory acute myeloid leukaemia (AML) with a FLT3 mutation. Find out what this means for patients in Scotland here....