Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute for Health and Care Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Travel

A holiday is usually a time of relaxation, but after a blood cancer diagnosis, you may find it harder to find a travel insurance company that will cover you. It can be difficult, but planning your trip more carefully can help you feel more relaxed, leaving time for you to enjoy your holiday.

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Take a Moment to Catch Up

View our latest news and blog articles

October 31st

October Fundraising: Highlighting our community

With spooky season in full effect, we want to share some of the fang-tastic fundraising you have done this October in support of those living with Leukaemia....

October 20th

Leukaemia Care successfully campaigns for nationwide access to new chronic lymphocytic leukaemia treatment

The National Institute for Health and Care Excellence (NICE) and Scottish Medicines Consortium (SMC) have announced the approval of zanubrutinib on the NHS for patients with chronic lymphocytic leukaemia (CLL) in all nations of the UK....

October 9th

Leukaemia Care successfully campaigns for a new treatment for patients with cytomegalovirus (CMV) in Scotland

Today, the Scottish Medicines Consortium (SMC) has announced the approval of maribavir (Livtencity), a new medicine for adults with a post-transplant CMV infection that is resistant to current treatments. ...