Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Financial Hardship Fund

Our Financial Hardship Fund provides grants of up to £200 for essential living costs to patients and families affected by leukaemia, myelodysplastic syndrome (MDS) or myeloproliferative neoplasms (MPNs).

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Take a Moment to Catch Up

View our latest news and blog articles

February 26th

Five reasons why everybody should have a Will

Over 50% of UK adults do not have a Will - here we outline five reasons why everybody needs one. ...

February 10th

Patient Perspective – Lockdown and the vaccine

In her latest blog, our resident patient blogger Vickie talks about how she’s getting on in lockdown, and her experience of having her first COVID-19 vaccination....

January 18th

Financial support for blood cancer patients affected by coronavirus

It’s an extremely anxious and difficult time, and while the primary concern is health, your financial wellbeing is also important. Many of you will be concerned about losing your jobs, paying your mortgage and how sick pay and benefits work. We hope that the following information is useful and may answer some of your questions on these issues, but you can contact us at Leukaemia Care and speak to our Welfare Officer who will be able to advise you further....