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Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Book a school talk

Fundraising helps children learn to be responsible and care for others and it can also be integrated into the curriculum to make it fun, engaging and educational. We have a variety of fundraising activities for primary school children that are easy, fun, rewarding and simple.

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Take a Moment to Catch Up

View our latest news and blog articles

June 11th

Caring for Joe

Joe was just four years old when he was diagnosed with acute lymphoblastic leukaemia (ALL) and his parents suddenly found themselves carers for a child with blood cancer. In this blog for #CarersWeek, Joe’s dad explains what it’s like to be a carer, and gives an update on how Joe is doing 15 months after treatment....

June 7th

Alan Naylor – A lifetime of giving

Alan Naylor is one of our longest-standing community volunteers. Over the past twenty years, Alan has raised close to £30,000 for Leukaemia Care through a range of events, including weekly quiz nights, discos and skydives. Seeing as this week is Volunteers’ Week, we decided to have a chat with Alan to find out more about his unwavering dedication to Leukaemia Care. ...

May 31st

Breathlessness

Approximately one-third of patients will report feeling weak or breathless as a symptom prior to being diagnosed with leukaemia. In this article, we take a look at how you can spot breathlessness as a symptom of leukaemia....