Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Being or becoming employed

This information is designed to help you explore your rights, whatever your decision might be.

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Take a Moment to Catch Up

View our latest news and blog articles

March 27th

Financial support for blood cancer patients affected by coronavirus

It’s an extremely anxious and difficult time, and while the primary concern is health, your financial wellbeing is also important. Many of you will be concerned about losing your jobs, paying your mortgage and how sick pay and benefits work. We hope that the following information is useful and may answer some of your questions on these issues, but you can contact us at Leukaemia Care and speak to our Welfare Officer who will be able to advise you further. ...

March 24th

Self-isolation/shielding for people with blood cancers – FAQs

The government have now issued full advice for all people considered at extra high risk of severe disease if they contract coronaviruses. We have broken this information down for you in this blog. ...

March 20th

Coping with Mother’s Day

Sheila Appiah’s daughter, Imogin, sadly passed away from acute lymphoblastic leukaemia (ALL) in 2010. Since her daughter’s passing, Mother’s Day has been difficult, but in this blog Sheila shares her advice for other parents on how to cope....