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Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Read More

Take a Moment to Catch Up

View our latest news and blog articles

December 9th

The Scottish Medicine Consortium (SMC) recommends the use of ruxolitinib on the NHS for polycythaemia vera (PV) patients

The Scottish Medicine Consortium (SMC) has announced that it is recommending the use of ruxolitinib on the NHS for Polycythaemia vera (PV) patients who are resistant or intolerant to hydroxyurea. Ruxolitinib is not currently available for PV in England and Wales for the treatment of PV....

November 17th

Festive fundraising

Do something amazing for blood cancer patients this festive season by trying out one of our fundraising ideas....

October 31st

Patient Perspective – Getting ready for winter

As the nights creep in, and with them the cold, our patient blogger Vickie is sharing her tips on keeping warm, and looking at why it’s important blood cancer patients take precautions for the cold weather....