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Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Hairy Cell Leukaemia

Hairy cell leukaemia (HCL) is a very rare form of cancer. It usually develops very slowly and is referred to as a chronic leukaemia.

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Take a Moment to Catch Up

View our latest news and blog articles

December 18th

2019 – A year in review

Find out what we got up to for our 50th anniversary year....

December 15th

Support available over Christmas

Find out what support is available for you over the 2019 Christmas period....

December 11th

Patient Perspective: Coming off my medication

In her final blog of the year, patient blogger Vickie is talking about her experience of coming off her medication for chronic myeloid leukaemia....