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Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Our campaigns

We run campaigns throughout the year, and need you to get involved and help raise awareness.

What is campaigning and advocacy?

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

Know your rights toolkit

We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.

Patient Advocacy Groups

We are involved with a number of organisations and coalitions on your behalf which, through collaborative working, aim to ensure that the collective voice of blood cancer patients is heard.

Working with the pharmaceutical industry

We work with the pharmaceutical industry to ensure that they take the interests of patients into account when developing new drugs and treatments for blood cancer patients.

Health Technology Appraisals

This involves working with bodies such as the National Institute of Clinical Excellence (NICE), the Scottish Medicines Consortium (SMC) and the All Wales Medicines Strategy Group (AWMSG) to ensure that the views of patients are taken into account when making decisions over access to drugs and treatments.

Appearance

Following a blood cancer diagnosis, you will have many questions. Some of these may relate to changes to your appearance during cancer treatment.

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Take a Moment to Catch Up

View our latest news and blog articles

August 14th

Nausea or vomiting as a symptom of leukaemia

Nausea and vomiting are normal things to experience when ill. However, in combination with other symptoms, they could also indicate a leukaemia ...

August 14th

Could muscle or back pain indicate leukaemia?

Muscle or back pain is a lesser known sign of leukaemia. Find out more about what might make this common ailment a warning sign for the blood cancer...

August 14th

What does numbness in the hands or feet mean?

It is important to know that leukaemia is rarely the cause of peripheral neuropathy. More common causes range from diabetes, excessive alcohol consumption, vitamin B12 deficiency to infection or reactions to certain medicines. However, if you do notice any of the above symptoms, it is crucial that you visit your GP to properly investigate the underlying cause. Make sure to push for a blood test if you are experiencing any other symptoms of leukaemia....