Patient voices
People affected by leukaemia are experts in their own lives. Their experiences matter and should shape how services and systems work.
We make sure patient voices are heard and respected.
Listening to lived experience
We collect insight through:
- Support services
- Support groups and peer support
- Surveys and feedback
- Conversations with patients, families and carers
This helps us understand what is working and where change is needed.
Turning voices into change
We use patient voices to:
- Inform our campaigns and advocacy
- Share real experiences with decision-makers
- Help improve services and care
Nothing we do in this space happens without listening first.
Evidence of this work
We work with our Patient Advisory Panel to help gather this evidence and insight and apply across our work.
We work with patients to provide voices from those who have experienced leukaemia to help inform decisions on new treatments. These are known as health technology appraisals.
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