Leukaemia Care and Lymphoma Action release new patient information booklet on CLL and SLL

Leukaemia Care are pleased to announce our new patient information booklet in collaboration with Lymphoma Action about chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL).

CLL and SLL are slow-growing types of blood cancer. They are two different forms of the same illness. In CLL, the cancer cells mainly build up in the blood and bone marrow. In SLL, the cancer cells mainly build up in the lymph nodes.

Being diagnosed with CLL/SLL can be a shock, particularly if you have never heard of it before. Leukaemia Care and Lymphoma Action have worked together on this booklet to help you understand what CLL/SLL is, and how it is diagnosed and treated. It includes practical tips to help you live well with CLL/SLL, and details of where to go for further information and support.

Vicki Gregory, Senior Medical Writer at Lymphoma Action, said “Working together meant we could draw on the strengths of both charities to produce the best possible resource for people affected by CLL or SLL.”. Isabelle Leach, Patient Information Writer at Leukaemia Care, agreed “Cooperation of the two charities led to a better understanding of the two different forms of this blood cancer, and made patients aware of their distinct characteristics”.

This booklet has been medically reviewed by Dr George Follows, Consultant Haematologist and Clinical Lead for CLL/Lymphoma, Cambridge University Hospitals, and Helen Knight, CLL Clinical Nurse Specialist, Nottingham University Hospitals. We’re also grateful to Antje, Carl, Doreen, Erica, Jenny, Kate, Michael, Sylvia and other people diagnosed with CLL for sharing their experiences.

If you would like to order a free hard copy, you can here.

If you have been diagnosed with CLL or SLL and need support or advice, call our free helpline on 08088 010 444 or email support@leukaemiacare.org.uk. Alternatively, you can call Lymphoma Action’s helpline on 0808 808 5555 or email information@lymphoma-action.org.uk.

Download the new booklet here.

Campaigning & Advocacy

As a charity we are actively involved in campaigning on behalf of patients and their carers, which we feel is an important part of the work that we do. We are passionate about doing everything we can to improve the experience of patients throughout their cancer journey.

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