Privacy policy

The Leukaemia Care privacy policy as of 6th March 2024

The content on our site is provided for general information only. It is not intended to amount to advice on which you should rely. You must obtain professional, medical or specialist advice before taking, or refraining from, any action on the basis of the content on our site.

We may update our site from time to time, and may change the content at any time.

Although we make reasonable efforts to update the information on our site, we make no representations, warranties or guarantees, whether express or implied, that the content on our site is accurate, complete or up-to-date.

Our website is intended for a UK-based audience and only in relation to their activities within the UK, and we have used our best endeavours to ensure that our site complies with UK law. However, we make no representations that the materials on our site are appropriate or available for lawful use in locations outside the UK.

The type of personal information we collect

We currently collect and process the following information: 

  • Personal identifiers, contacts and characteristics, for example, name and address. 
  • Email addresses and phone numbers, should you choose to share them with us. 
  • Health information, such as blood cancer type if you share this with us. 
  • Where you work, if you share this with us. 
  • Cookies from your internet usage on our website – Please see tab on our cookie policy below
  • In our annual survey, we may also collect other information such as race, religion or belief, and sexual orientation. We do this to monitor how far-reaching our services are within different communities. Any information that we do collect of this type is stored on our database against your record. However, if you do not want us to retain this information, please get in touch and we will ensure that it is removed from your record and not retained in the future.  
  • Your connection to the charity, for example, the services you may use or if you are a donor. 
  • Information that may identify you as a potential giver to the charity, sourced through publicly available sources such as Companies House. 
  • You represent one of our suppliers such as IT support, cleaning or buildings maintenance. 

How we get the personal information and why we have it

Most of the personal information we process is provided to us directly by you for one of the following reasons: 

  • You want to receive information from the charity about a type of leukaemia or associated condition and have shared your contact details for us to send a physical or digital copy. 
  • You have signed up to receive a support service such as receiving a Cost-of-Living Grant or subscribing to our hardcopy magazine. 
  • You have signed a petition on an issue supported by Leukaemia Care. 
  • You have chosen to sign up to take part in fundraising for Leukaemia Care. 
  • You have donated to Leukaemia Care and have supplied your details as part of processing this.  
  • You have supplied this information as part of a contract as a service provider to the charity.  

We also receive personal information indirectly, from the following sources in the following scenarios: 

  • You may have completed a survey about your diagnosis and have agreed to have your information shared with relevant third parties. 
  • You have signed up to take part in a third-party event and have signed to say that you are happy for your details to be shared with the charities you have chosen.  

We use the information that you have given us to provide you with the information or services you requested, such as processing your donations, sending newsletters or updates or responding to your enquiries. We do collect the data of people who disclose their type of leukaemia or associated condition. This is stored on our database so we can tailor our services to you, for example, sending you information about a support group which specialises in your condition. We never share this information with 3rd party organisations. If you do not wish us to keep information on your diagnosis, please get in touch and we will ensure this information is not retained.  

We may share this information with other organisations to perform our services. For example, our mailing house who print and send out our magazine will require the data of subscribers to post the magazines out.  

Under the UK General Data Protection Regulation (UK GDPR), the lawful basis we rely on for processing this information are:  

  • Your consent. You are able to remove your consent at any time. You can do this by contacting communications@leukaemiacare.org.uk 
  • We have a contractual obligation. 
  • We have a legitimate interest. 

 

Wealth screening

Leukaemia Care may conduct wealth screening activities to better understand our supporters and tailor our communications and fundraising efforts. Wealth screening involves analysing publicly available information to assess an individual’s capacity to support our charitable mission.  

Data Sources 

We may use reputable external sources, such as publicly available databases or professional fundraising organisations, to obtain information for wealth screening purposes. These sources may provide information related to an individual’s wealth, property ownership, philanthropic activities, and other relevant data.  

Purpose and legal basis 

The purpose of wealth screening is to enhance our fundraising strategies and ensure that our communications and appeals are targeted appropriately The legal basis for conducting wealth screening is our legitimate interest in fundraising effectively and efficiently to support our charitable objectives.  

Types of Data collected 

As a fundraising organisation, we undertake in-house research and from time to time engage specialist agencies to gather information about you from publicly available sources, for example, Companies House, the Electoral Register, company websites, ‘rich lists’, social networks such as LinkedIn, political and property registers, and news archives. We may also carry out wealth screening to fast-track the research using our trusted third-party partners. You will always have the right to opt out of this processing. We may also carry out research using publicly available information to identify individuals who may have an affinity to our cause but with whom we are not already in touch. This may include people connected to our current major supporters, trustees or other lead volunteers.  

We also use publicly available sources to carry out due diligence on donors in line with the charity’s Gift Acceptance Policy to meet money laundering regulations. This research helps us to understand more about you as an individual so we can focus conversations we have with you about fundraising and volunteering in the most effective way and ensure that we provide you with an experience as a donor or potential donor which is appropriate for you.  

Confidentiality and Security 

We understand the importance of protecting personal information, including wealth screening data. We ensure that appropriate technical and organisational measures are in place to safeguard the confidentiality, integrity and security of the data we collect during wealth screening.  

Consent and Opt-Out 

We respect your preferences regarding the use of your personal information. If you prefer not to have your personal information included in wealth screening activities, please contact us using the contact information provided below and we will ensure that your information is excluded from such activities.  

FAO Hayley Wessier, Head of Fundraising 

Address: Leukaemia Care, One Birch Court, Blackpole East, Worcester, WR3 8SG 

Email: hayley.wessier@leukaemiacare.org.uk  

Phone: 01905 755977 

Retention Period 

We will retain wealth screening data only for as long as necessary to fulfill the purposes outlined in this Privacy Policy or as required by law. After the retention period, we will securely delete or anonymize the data.  

Please note that the results of the wealth screening are used internally and are not shared with external parties, except as outlined above. 

Additional Information 

Please be aware that wealth screening is carried out in accordance with applicable data protection laws and regulations, and we are committed to ensuring transparency and accountability in our use of personal information for fundraising purposes. 

How we store your personal information

Your information is securely stored on our database, Raisers Edge NXT. All user accounts are secured using two-factor authentication. 

Our cookie policy

Cookies are small text files that may be automatically stored on your computer or mobile device by the websites you visit.

We use the following types of cookies:

  1. Strictly necessary. Required for the operation of our website. They include, for example, cookies that enable you to log into secure areas of our website, use a shopping cart or make use of e-billing services.
  2. Analytical/performance. They allow us to recognise and count the number of visitors and to see how visitors move around our website when they are using it. This helps us to improve the way our website works, for example, by ensuring that users are finding what they are looking for easily.
  3. Functionality. These are used to recognise you when you return to our website. This enables us to personalise our content for you, greet you by name and remember your preferences (for example, your choice of language or region).
  4. Targeting. These cookies record your visit to our website, the pages you have visited and the links you have followed. We will use this information to make our website and the advertising displayed on it more relevant to your interests. We may also share this information with third parties for this purpose.

Our website uses cookies to distinguish you anonymously from other users of our website, this helps us to provide you with a better experience when you browse our website and also allows us to improve our site.

By continuing to browse the site, you are agreeing to our use of cookies.

You can find more information about the individual cookies we use and the purposes for which we use them in the table below, which will be updated periodically as we start using new cookies and stop using old ones.

Please check back here to see which cookies are in use at any given time.

leukaemiacare.org.uk Cookies

Please note third parties (including, for example, advertising networks and providers of external services like web traffic analysis services) may also use cookies, over which we have no control. These cookies are likely to be analytical/performance cookies or targeting cookies.

Any information regarding the data retention or privacy policies of third parties services is supplied in good faith and is subject to change by the relevant provider.

Analytics cookies on our website:

 This website uses Google Analytics, a web analytics service provided by Google, Inc. (“Google”). The information generated by the cookie about your use of this website (including your IP address) will be transmitted to a Google server in the USA and stored there. Google will use this information for the purpose of evaluating your use of the website, compiling reports on website activities for website operators and providing other services relating to website activity and internet usage. Google may also transfer this information to third parties where this is required by law or insofar as third parties process this data on behalf of Google. Google will never associate your IP address with any other data held by Google.

For more information about Google Analytics cookies please Click Here.

HotJar

This website uses HotJar which is a behaviour analytics and user feedback service that helps us to understand the behaviour of you, our website users, and get feedback through tools such as heatmaps, session recordings, and surveys.

Hotjar cookies are categorised as Analytical / Performance, a large majority of these can be identified easily as they are prefixed with the letters hj or _hj.

You can find a full list of Hotjar cookies here if you wish to investigate further and block.

Managing / Blocking Cookies:

You can stop the use of cookies by activating the setting on your browser that allows you to refuse the setting of all or some cookies. However, if you use your browser settings to block all cookies(including essential cookies) you may not be able to access all or parts of our site.

Please see the links below for instructions on limiting cookies for your browser:

To opt out of being tracked by Google Analytics across all websites, you can install a small plugin proposed by Google for all major browsers. For more information you can visit:
https://tools.google.com/dlpage/gaoptout

Your data protection rights

Under data protection law, you have rights including: 

  • Your right of access: You have the right to ask us for copies of your personal information.  
  • Your right to rectification: You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.  
  • Your right to erasure: You have the right to ask us to erase your personal information in certain circumstances.  
  • Your right to restriction of processing: You have the right to ask us to restrict the processing of your personal information in certain circumstances.  
  • Your right to object to processing: You have the the right to object to the processing of your personal information in certain circumstances. 
  • Your right to data portability: You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances. 

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you. 

Please contact our Data Protection Officer who is: 

Monica Izmajlowicz (Chief Operating Officer) 

Address: Leukaemia Care, One Birch Court, Blackpole East, Worcester, WR3 8SG 

Phone: 01905 755977 

Email: monica.izmajlowicz@leukaemiacare.org.uk  

If you wish to complain

Our Complaints Procedure is available on our website, or you can request a copy by calling the office on 01905 755977. 

If you have any concerns about our use of your personal information, you can make a complaint to us at: 

FAO Monica Izmajlowicz (Chief Operating Officer) 

Address: Leukaemia Care, One Birch Court, Blackpole East, Worcester, WR3 8SG 

Email: monica.izmajlowicz@leukaemiacare.org.uk 

Phone: 01905 755977 

You can also complain to the Information Commissioners Officer (ICO) if you are unhappy with how we have used your data.            

Information Commissioner’s Office 

Wycliffe House 

Water Lane 

Wilmslow 

Cheshire 

SK9 5AF 

Helpline number: 0303 123 1113 

ICO website: https://www.ico.org.uk 

If you are looking for support, contact our services team

Call free on 08088 010 444 (Monday-Friday: 9am – 10pm, Saturday 9am – 12.30pm) or email support@leukaemiacare.org.uk

Page last updated on: 6th March 2024