Living with Leukaemia – 2016 survey

Our report 'Living with Leukaemia' which seeks to raise awareness of what leukaemia is and the signs and symptoms among GPs and members of the public.

There are 26 new cases of leukaemia diagnosed in the UK every day, equating to approximately 9,500 new cases of leukaemia each year.

The word leukaemia is relatively well known but there is often little public understanding of what leukaemia is and how it affects the body. Leukaemia is a cancer of the blood-forming stem cells and leads to an overproduction of abnormal white blood cells. These cells play a vital role in the immune response against disease and infection, but the cancerous cells do not function properly. There is currently no known cause of leukaemia.

Many people associate leukaemia with children and whilst it is the most common childhood leukaemia (accounting for 1 in 3 cases); the majority of leukaemia patients are adults, with around 2 in 3 leukaemia patients being over the age of 65 years old.

Leukaemia Care partnered with Quality Health to undertake a 2016 patient experience survey of individuals who had, or were undergoing, treatment for blood cancer. The survey is designed to improve the understanding of issues faced by leukaemia patients and inform the work that Leukaemia Care are doing to support patients.

2,019 leukaemia patients shared their experience through the survey and Leukaemia Care have compiled the data and produced a report with the findings.


The executive summary report of the main findings and recommendations can be accessed here. 

The full report can be accessed here. 

Our 2016 patient experience survey is one of the biggest done to date in the UK – thank you to everyone who responded.

We would also like to thank ACLT, Anthony Nolan, Basil Skyers Myeloma Foundation, Bloodwise, CLL Support Association, CML Support Group, Lymphoma Association, MDS UK, MPN Voice, Myeloma UK and WMUK for their help in sharing the survey.