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Patient Experience Survey

The 2017 patient survey is now live and we need your help to improve the experience of blood cancer patients!

In 2016, Leukaemia CARE partnered with Quality Health to develop the 2016 blood cancer patient experience survey. 2,519 patients shared their experience of blood cancer from diagnosis through to living with and beyond cancer.

This survey has helped to provide evidence to the extent of issues faced by blood cancer patients in the UK and inform our work at Leukaemia CARE. The leukaemia-specific findings and subsequent recommendations for improvements were highlighted in the ‘Living with Leukaemia report - those relating to diagnosis were used to inform our #SpotLeukaemia campaign for blood cancer awareness month.

This year Leukaemia CARE's patient survey is running again from September through to Saturday 16th December and we want you to share your blood cancer experience.  

The 2017 patient survey aims to:

1. Provide a deeper understanding of the issues faced by blood cancer patients, particularly those diagnosed with rare types of blood cancer.

2. Give a greater picture of regional differences between patient experiences.

3. Understand which patient experience issues are getting worse by comparing results to those from 2016 – this will then prioritise the focus of future campaigns.

With your help we will have a greater understanding of the issues faced by blood cancer patients. This will help direct Leukaemia CARE’s future work and bring about changes where they are most needed.

Share your experience. Inform our work. Improve the future experience of blood cancer patients.

Take our survey


If you would like to request a hard-copy of the survey, please call 01905 755977 or email