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15
Jun
Quality of Life – How should it be measured?

written by

Leukaemia Care, Charity

  • Rachel Partridge 2

The London School of Economics (LSE) is leading a research project investigating how the methods used in Health Technology Appraisals (HTAs) can be improved to meet the needs of patients and healthcare systems. A key area of this research is focused towards the way in which patients’ experience and quality of life is measured.

At present a tool called ‘EQ-5D-5L’ is used, but this tool has been subject to considerable discussion concerning how accurately it reflects the things that matter to people living with an illness. It is important that the views of patients’ are accurately reflected to ensure that the things that matter to patients are at the heart of future decisions about access to medicines.

The tool is heavily used in clinical trials and Health Technology Appraisals (by bodies such as NICE – the National Institute for Health and Care Excellence) to measure how new treatments effect the quality of life of patients. As such it is important that the tool adequately represents the things that matter to patients to ensure that the views of patients’ are accurately represented and taken into account by decision makers when new treatments are being appraised.

LSE are undertaking a survey aimed to answer the question “Does EQ-5D-5L accurately and reliably reflect the aspects of their health that matter most to patients?”

The questionnaire will take approximately 5 minutes to complete and must be completed in one setting. All responses are anonymous. There are two surveys, one is designed for patients and the other is designed for carers.

A copy of the questionnaire for patients is available here.

A copy of the questionnaire for people providing support and care for patients is available here.