Stay connected! Share and follow:

Leukaemia CARE Careline

We're here to talk | 24-hours a day

08088 010 444

FREE from landlines & most major mobile networks

How will it affect you?

Being a carer can have a huge emotional impact, your life may revolve around the patient from first thing in the morning to last thing at night. You may experience many different feelings and emotions some of which you have not had to deal with before. You may feel anxious, angry, scared and even lonely. It is important to recognise that how you are feeling is perfectly normal and valid.

You may not think of yourself as a carer if you look after someone with a blood cancer. You may feel that you are “just their partner, sibling, parent or friend’

However, if you help to care for them, help with shopping, taking them to their hospital appointments or providing emotional support you are their carer.

There is a wealth of information available for carers which could help you understand the journey you are going on, and the emotional and practical issues you may face.

Our Step by Step booklet, Caring for Carers is available if you would like more information and advice on what to expect.

You could also visit these organisations for more advice:

Carers UK; a charity which aims to help the millions of people who look after an older, disabled, or ill family member of friend. They provide information, support and advice.

Carers Trust; works to improve support, services and recognition for anyone living with the challenges of caring. 

Deborah Alsina has cared for her husband, Rogelio, for ten years since his diagnosis of chronic myeloid leukaemia, a type of blood cancer.

"When my husband was diagnosed with cancer I felt my whole world fell apart. For a long time, we had no idea if he would live and so we put our hopes and dreams on hold. He was the patient yet my life was affected too.  We found our strength by supporting each other and deciding to live as though he was going to live not die.

“Now 10 years on, he isn't cured but the rollercoaster is much calmer. I hope that by sharing our story, I can give hope to others and highlight that thought and focus must also be given to the families of cancer patients."