Campaigning & advocacy

Campaigning and advocacy is an important part of the work that we do, and we are involved in a variety of organisations and coalitions on your behalf.

You can read more about all the organisations we work with, as well as the latest news from each of them. Our involvement means that we can use our influence to affect government policy, and affect the outcomes of patients that are affected by blood cancer.

As a charity we are involved in campaigning, particularly with regard to patient wellbeing, NHS funding and the availability of drugs and treatment. We are passionate about doing everything we can to improve the journey that patients go through from diagnosis to treatment.

If you need support with campaigning please email us or call 08088 010 444.

Defining High Quality Care for Haematological Cancer Patients

One of our latest projects as part of our campaigning work has been our "Defining High Quality Care for Haematological Cancer Patients" survey. Many of you will have kindly completed the survey last year, and we would like to thank those who got involved.

The aim of this survey was to examine the quality of services for blood cancer patients from the perspective of patients and carers, and how better care can be incentivised and delivered.

Our key recommendations include:

Diagnosis: All people with suspected blood cancer should be diagnosed as quickly as possible, with swift referral from primary care into specialist services.

Support: All blood cancer patients should have access to a named clinical nurse specialist (CNS) throughout the duration of their care and receive a personalised written care plan which reflects their individual needs and preferences.

Choice: All blood cancer patients should be supported to exercise choice regarding where and how they receive their care.

Treatment: All blood cancer patients should be provided with tailored information and support to be able to make informed decisions about the treatment options that are best for them.

These recommendations are supported by practical guidance on how each can be implemented.

You can read our full report here, as well as our four key recommendations.

We will be sending out this survey to key policy makers in various areas of the health service and government. We hope that it will be considered when these individuals are making decisions that affect blood cancer patients. 

For more information, call 08088 010 444, or email us.