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The Importance of Patient and Carer Conferences

written by

Leukaemia Care, Charity

  • Conference

You may have heard about our patient and carer conferences and wondered what all the fuss is about, whether there is any point in going and if you will actually benefit by attending.

For many people, talking or hearing about issues surrounding their diagnosis can be emotional and hard to deal with. You may have feelings of being out of control of yours or your loved one’s situation. You may just need to hear some reassurance from experts in this field but either don’t have the opportunity or are too scared to approach them on a one-to-one basis.

This is why our patient and carer conferences are so vitally important as one of our services. It gives patient and carers the opportunity to ask questions about specific diseases or side effects and listen to eminent professional speakers and medical professionals, in a friendly relaxed environment.

The purpose of our conferences

The aim of our conferences is for you as a patient or carer to come away with more knowledge about your situation, by making our talks informative and understandable. Upon diagnosis you will have lots of complicated terms thrown at you which, combined with the obvious mix of emotions you will feel after being diagnosed, can be a bit too much to handle. By making these talks more understandable for everyone, it can create a calm atmosphere making you more confident and comfortable, as you can understand more about what is or has been happening to you. When it comes to your health, no one wants something sugar coated. These talks will tell you exactly how it is which will ultimately help you to feel more in control.

Meeting others

This opportunity also allows you to meet other people who could be or have been in the same situation as you. Obviously your family and friends will want to help and support you in any way they can. However, some people feel that others don’t understand what they’re going through as a patient or a carer and can put strain on relationships. Our conferences mean that you could find someone who is going through the same situation as you. If you have a rare form of blood cancer, this can be even more isolating for you, and at one of our conferences you may meet someone who might be going through a similar journey to you. This can help to remind you that you’re not alone and that there is support for you.

These conferences also allow us as a charity to meet the people behind the diagnosis, making our services more personal to you meaning we can tailor our support services to you. This is why we would actively encourage you to come up and ask us questions at conferences, introduce yourself and tell us a little bit about you. We don’t bite!

A diagnosis of blood cancer can be a hard time in people’s lives. But our support services, like our patient and carer conferences, are invaluable to you as a person and we will always want to provide you with anything that can make you feel more confident and in as much control as possible.

To find out more information or book onto one of our conferences click here or phone the CARE line on 08088 010 444

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