We're here to talk | 24-hours a day
08088 010 444FREE from landlines & most major mobile networks
Providing support to anyone affected by blood cancer
Our Campaigns and Advocacy team are here to help you take greater control of the decisions that affect you. They can help you access information, explore your options and make informed decisions.
Our Campaigns and Advocacy team are here to offer support overcoming issues. This may include difficulties accessing healthcare, issues at work or providing you with information to enable you to make informed decisions.
Advocacy is getting support from another person to help you express your opinions, needs and wishes. Somebody who helps you in this way is called an advocate. They are there to help support your choices, not to give you their opinion or make decisions for you.
Our Campaigns and Advocacy team can:
We have produced a number of bitesize pieces of information to help you understand the options that are available to you, access further information and make informed decisions.
Everybody who is cared for by the NHS has formal rights as an NHS patient. These rights are set out in the NHS Constitution.
Get your point across in the most persuasive way and take a look at this months advocacy toolkit.
Read more: Writing to a decision maker (PDF)
As a parent, knowing your employment rights is important when your child has leukaemia.
A generic drug is a version of a branded medicine made by a different company. Be in the know in this version of our Advocacy Toolkit.
Read more: Generic Medicines - What are your rights?
Find out more here; NHS waiting times - What are my rights as a patient? (PDF)
Find out all about where you stand when submitting a complaint about the NHS.
In this Advocacy Toolkit, we look at discrimination in cancer patients and provide you with more information on the Equality Act.
Find out more here; Discrimination and Cancer – The Equality Act (PDF)
In this advocacy toolkit, we're advising you on your right to access treatment once it's been recommended for use by the National Institute for Health and Care Excellence (NICE).
Find out more here; Right to treatment – England – NICE recommendation (PDF)
In this advocacy toolkit, we're looking at biosimilar medicines. Our informative PDF explains what they are, why we need them and much much more.
Find out more here; What is a biosimilar? (PDF)
In this advocacy toolkit we're looking at what is immunotherapy? Our informative PDF provides you with information on the immune response, antibodies and the different types of immunotherapies as well as much much more.
Find out more here; What is immunotherapy? (PDF)
Our toolkit is here to talk you through the procedures in place for patients who want to gain access to funding for services or treatments not routinely provided by the NHS.
So you can access the information that’s right for you we have split this information into the four UK regions. You can access this information below:
Read the NHS England's procedure here; Individual Funding Requests – England (PDF)
Read the NHS Scotland procedure here; Individual Patient Treatment request - Scotland (PDF)
Read the Wales procedure here; Individual Funding Requests – Wales (PDF)
Read the Northern Ireland Health and Social Care Board (HSCB) process here; Individual Funding Request – Northern Ireland (PDF)
Our latest advocacy toolkit is here to equip you with the information you need to understand your rights.
In this issue, we're looking at your rights when choosing your healthcare providers, from GP services through to end of life care, and your rights when it comes to making decisions on your treatment.
In this issue our Campaigns and Advocacy team take a look into the pros and cons of Chimeric antigen receptor t-cell therapy, better known as CAR-T therapy.
Find out more here: CAR-T therapy (PDF)
In this issue, our Campaigns and Advocacy team takes a look at rights for Carer's and provides you with information and support that is available to you.
Find out more here: Carer's Rights (PDF)
"Minimal residual disease is the presence of small, but measurable, numbers of leukaemia cells in the blood of a patient who does not have any clinical presentation of a blood cancer (i.e. the patient is in remission)."
In our final advocacy toolkit of the year, our Campaigns and Advocacy team are equipping you with all the information you need on minimal residual disease.
Find out more here; Minimal Residual Disease (MRD) (PDF)
In this toolkit, we take a look into the treatments for Philadelphia-positive Chronic Myeloid Leukaemia (CML) that have led to treatment free remission (TFR) being one of the biggest topics on the agenda for CML.
A simple google search for ‘leukaemia’ yields over 6 million results, but with so much information available at the touch of a button, it can sometimes be difficult to know what is accurate, relevant and up-to-date.
In this Advocacy Toolkit you'll find guidance about how to find trusted information on the internet.
Find out more here; Using the interest safely to find infomation (PDF)
Our Campaigns and Advocacy team are able to support you where you need further help.
They are available Monday to Friday from 9:00am – 5:30pm. If you would like to speak to them, you can:
Please note that our Campaigns and Advocacy team are unable to provide: