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Providing support to anyone affected by blood cancer
Leukaemia CARE is a national blood cancer support charity. We are dedicated to ensuring that anyone affected by blood cancer receives the right information, advice and support.
A diagnosis of a blood cancer can have a huge impact on someone emotionally, as well as physically. We understand that feelings of shock, anger and loneliness are all common at the time of diagnosis, during treatment and recovery and having someone to talk to, as well as the right information available can be a huge comfort.
We not only support patients, but carers and families too who can often carry a lot of the emotional strain when someone they love is diagnosed with a blood cancer.
We focus on the support that is needed now to help those affected by blood cancer cope during a diagnosis and beyond.
It all began with a group of parents whose children had leukaemia. Sat around a kitchen table, they decided to set up one of the first ever support groups to help others going through a similar situation. What once started as one, we have grown to over 15 support groups across the UK. Leukaemia CARE registered with the Charity Commission on 11th September 1969 and has since transformed into a national charity with a passionate team of employees, trustees and, of course, volunteers.
The charity was originally formed as a children’s leukaemia charity. Thirty years later, Leukaemia CARE now offers support to people of all ages affected by any blood or lymphatic cancer.
The purpose of our Code of Practice is to provide clear principles and guidance on how we work with the pharmaceutical industry. It enables us to work collaboratively with all stakeholders to achieve our aims and objectives, without compromising our integrity or impacting on the support offered to anybody affected by a blood cancer.
Our Code of Practice was developed to demonstrate the commitment of Leukaemia CARE to adhere to consistent and transparent policies. It is intended to minimise the impact of any real, potential or perceived conflict of interest by regulating how we work with, or accept funding from, the pharmaceutical industry.
Leukaemia CARE provides information and support to anybody affected by a diagnosis of any blood cancer. As such, we recognise the importance of working collaboratively with all stakeholders with an interest in blood cancers, to ensure that we do our best to meet the needs of patients as well as their carers, families and friends. Working collaboratively with other stakeholders can enable us to achieve our aims and objectives, often providing opportunities to raise awareness of issues and improve the lives of anybody affected by blood cancer.
We recognise that this includes working together with all stakeholders, including members of the pharmaceutical industry. However, it is important that we do so without compromising our integrity or our ability to be independent and unbiased and we recognise the importance of being transparent in all areas of our work.
As Leukaemia CARE is a charity, we are dependent on external sources of support to fund our activities. Consequently, we are committed to developing a wide variety of long-term dependable sources of income. Whilst the vast majority of our funding comes from our own fundraising activities and those of our volunteers, any funding we receive from the pharmaceutical industry enables us to provide additional support that would not otherwise be possible.
Accepting funding will often be in the best interests of Leukaemia CARE and the people we support, but there may be circumstances when this is not the case. In these circumstances we will adhere to the requirements of this document and eschew any offered funding that may threaten to compromise our independence.
We have developed a Code of Practice to provide clear principles and guidance on how we work with the pharmaceutical industry and to ensure that our relationships are ethical, transparent and reflect positively on both organisations. It ensures we can achieve our aims and objectives without compromising integrity or impacting on our reputation as a credible, independent source of information and opinion.
Download a copy of our Code of Practice here.
Annual accounts for 2015/16 can be viewed here.